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News Release
Northwest Regional Newborn Bloodspot Screening Advisory Board meets March 1 - 02/19/21

Feb. 19, 2021

Contact: Jonathan Modie, 971-246-9139, PHD.Communications@state.or.us

Northwest Regional Newborn Bloodspot Screening Advisory Board meets March 1

What: The Northwest Regional Newborn Bloodspot Screening (NWRNBS) Advisory Board is holding a public meeting. The meeting is accessible by a webinar link or conference line.

Agenda: Welcome; Program updates and board business; Review disorders for potential removal from the NBS screening panel: Gaucher and Fabry; Public comment; Advisory board deliberation on whether to recommend removing Fabry and Gaucher from the NBS screening panel; Wrap-up and next steps.

When: Monday, Mar. 1, 8:30 a.m.-12:30 p.m. A 15-minute public comment period is scheduled at approximately 11:00 a.m.; comments are limited from one to three minutes depending on the number of people providing comments.

Where: Remote access only. Zoom access: https://pdx.zoom.us/j/82085819366

Dial by your location:        

+1 971 247 1195 US (Portland)        

+1 602 753 0140 US (Phoenix)        

+1 720 928 9299 US (Denver)        

+1 253 215 8782 US (Tacoma)

Meeting ID: 820 8581 9366

Background: The Northwest Regional Newborn Bloodspot Screening (NWRNBS) Program screens newborns for endocrine, hemoglobin, cystic fibrosis, immunodeficiency and metabolic disorders that may not be clinically evident in the first few days or weeks of life. Detecting these conditions early allows the infant to be referred for diagnosis and appropriate treatment to prevent death or disability. For more information, visit www.healthoregon.org/nbs.

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Everyone has a right to know about and use Oregon Health Authority (OHA) programs and services.  OHA provides free help.  Some examples of the free help OHA can provide are:

  • Sign language and spoken language interpreters
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If you need help or have questions, please contact Nicole Galloway at 503-693-4172, 711 TTY or S.AdvisoryBoard@dhsoha.state.or.us">NBS.AdvisoryBoard@dhsoha.state.or.us at least 48 hours before the meeting.

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